"For the grace of God has appeared bringing salvation to all men..." Titus 2:11
Dear Church Family,
It was absolutely wonderful to see you and be able to worship with you on Sunday, my heart was definitely over flowing with joy. My medical team sent me with so many cautions that I wanted to prepare you for what “life with Jan” will look like when I return soon.
There is a very good possibility that I will be able to be there again this Sunday and, if we can get a hold of some of the recent complications, they will allow me to move home the following weekend. In other words, our primary home would be back in New Braunfels while we travel to Houston instead of visa-versa. I will be starting to see my local oncologist as well, but they will keep me close to MDA for quite a while.
Some of these guidelines may seem silly but the transplant specialists have VERY good reason’s for them. Because I did not take them as seriously as I should, I ended up back in the hospital in critical condition for a week as well as staying in Houston a month longer than originally planned. God sufficiently yanked my chain and I learned that I had some areas of my heart when it comes to obedience that God needed to deal with. He is faithful to give us the desire’s of our heart when we cry out to be like Him. All this to say, I am called to not just be obedient to God but to the authority that God has placed in my life which includes the doctor’s who have done this 1000’s of times and God has placed as authorities in my life.
So this is where I not only “need your help” but I MUST HAVE your help to stay out of the hospital. You know me, I am a hugger, I love my church family and the hardest thing for me is not being able to hug and touch. I long for the day when those restrictions will not be there.
Here are 5 guidelines from my physician:
1. Babies and children are the biggest no-no, because they are exposed to and pick up much more sickness. People have described my immune system as that of an infant, well that is not as accurate as you think. An infant is born with their mother’s immune system to protect them, since it is not their own they are more “vulnerable” until they develop their own immune system. After transplant I have NO immune system, so I am vulnerable to absolutely everything until I develop my own system which takes approximately 18 months. At that time I will start the same immunization schedule that children go through.
2. I CAN’T be around babies, children, or even adults that are being immunized for four weeks. If I was exposed I would actually develop whatever disease they were immunized for. I really need you to protect me, for FOUR WEEKS please no contact if you, your babies or children have been immunized.
3. If you or a family member has been sick in the last week, even includes rashes, please stay back. In our area there are so many allergies we all think our coughs and sniffles are “just allergies” but I can’t take a risk that there is not an infection or bacteria involved. As much as I would love to visit with you please help me by staying away until everything is clear.
4. Hand washing and sanitizing is a REALLY big deal, that is the way a transplant recipient develops most infections. You will notice hand gel and antibiotic soap everywhere at the church, please use it if you come around me. I do it every time I move from one place to the next. So please don’t get your feelings hurt if I grab some hand sanitizer if either of us forgets and touch one another.
5. I cannot have plants or flowers in the house because of the bacteria. I also can not eat most fresh fruits or vegetables unless they are cooked well.
Thank you so much for taking the time to read this. I am looking forward to being able to hug your neck or shake your hand again but right now we still need to hug from a distance. You will see me hug my family, especially my grandchildren, please don’t feel like I am just cutting off other people. MDA allows family contact because they know how important that is for emotional recovery. If they are sick, or been exposed to someone sick or have had immunizations the rules all apply to them as well.
Love you,
Jan
{ 50 comments… read them below or add one }
Sweet Jan,
I know this has got to be so hard for you because I know how you love people! Consider yourself hugged by me at this moment. You are always in my thoughts and prayers. XOXO
How did you like my mickey mouse face mask?
I love you and continue to pray for you. Hugs and more hugs from here!
While you and I have never met I pray that you get 100% better. I started goin to Church again in March and I chose yours, because my brother has loved it for years. (Chris Luna) The feeling I have when I leave is something I’ve haven’t had in a long time. That feeling is Hope,Strength,Peace! You will get better because God Loves You!
Jan, I am so thankful that this procedure is working for you! Praise God from Whom all blessings flow!! Just read your update and am glad you got to come home. I’m praying that you will be back to hugging in record time! Can’t wait to see you some time in the near future. Hugs to both you and Noah! Luv you lots!
Hi Jan! Hugs from Phoenix! I have greatly rejoiced in the faithfulness of God as I have “caught up” with all you and Dennis have been going through. David & I have lovingly remembered and prayed for you over the years, especially around July 16th! Happy anniversary to you. I praise God for the love, mercy and grace He lavishly pours out on you. I stand in agreement for this to be the end of the cancer. I thank God for changing us from glory to glory. One day we will see Him face to face! What a day that will be! Until then may the Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you; The Lord lift up His countenance on you and give you peace.
Our love to you both.
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